By Andy Kryza — 2018
Child life specialists help families cope in a healthcare environment, and parents can look to them to learn how to help sick kids.
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When a child’s wellbeing depends on vigilant monitoring and consistent medical attention, the everyday anxiety and stress that all parents deal with is made worse by the fact that failing to keep up with treatment can be a matter of life and death.
Taking care of a chronically ill child is one of the most draining and difficult tasks a parent can face. Beyond handling physical challenges and medical needs, you’ll have to deal with your child’s emotional needs and the impact that a prolonged illness can have on the entire family.
Families—especially those who communicate openly—may be strengthened by experiences associated with managing their child’s health condition or disability.
Children and adolescents with Crohn’s disease deserve particular attention, as they often develop more severe disease, and have more specialized needs, in comparison with adults.
Nicholas Pinter’s autism and bipolar disorder pose challenges for his parents. His father, Mike, right, learned mindfulness methods to help reduce his stress.
I am haunted by the shocking discovery that our daughter, three, has a condition that may cause her to die in her teenage years. How can I come to terms with this and learn to enjoy the time we have?
As the number of people with severe disabilities, debilitating chronic diseases and terminal illnesses grows, concern about their care has focused primarily on long-term care facilities, nursing homes, home health aides and hospices.
Whether you choose to be a family caregiver or the job is thrust upon you by circumstances, your most important responsibility beyond caring for your ill or disabled relative is caring for yourself.
“Use only that which works, and take it from any place you can find it.” ~ Bruce Lee The premise of his philosophy was efficiency—complete and utter efficiency of the soul.
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The essential role that daughters play in the American health care system is well known but has received little attention.