By Linda Blair — 2008
I am haunted by the shocking discovery that our daughter, three, has a condition that may cause her to die in her teenage years. How can I come to terms with this and learn to enjoy the time we have?
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CLEAR ALL
With each diagnosis, knowing her life hung in the balance, she was “stunned, then anguished” and astonished by “how much energy it takes to get from the bad news to actually starting on the return path to health.”
As the number of people with severe disabilities, debilitating chronic diseases and terminal illnesses grows, concern about their care has focused primarily on long-term care facilities, nursing homes, home health aides and hospices.
When you are caring for a loved one with a long-term illness, caregiving becomes a marathon rather than a sprint.
When physicians help patients come to the profound revelation that childhood adversity plays a role in the chronic illnesses they face now, they help them to heal physically and emotionally at last.
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It’s the rare person who doesn’t need help coping with the stress, fatigue, and frustrations that chronic fatigue syndrome can bring. As a caregiver, you’ll need to learn all you can about chronic fatigue support.
Last week was the one-year anniversary of the beginning of my husband’s health crisis. As I gaze at the permanent handicap placard and at him sleeping, once again, on the couch, I’ve been reflecting on what I’ve learned this past year.